When someone is diagnosed with a brain tumor the amount of information provided can feel overwhelming and they may not know where to begin. Brain tumor advocacy organizations fight for the rights due to a patient and have put together documents to help patients and caregivers fight for the best care.
The Brain Tumour Patients’ Charter of Rights
The purpose of this charter is to achieve the best possible health and quality of life outcomes for adults and children living with a brain tumour. To represent an aspirational ideal against which quality standards, policies and practices are developed, monitored and delivered.
Download the charter here.
Glioblastoma Bill of Rights
The Glioblastoma Bill of Rights was crafted from the results of a 2019 survey taken by 400+ GBM patients and caregivers. It includes the right to: personalized care, genetic testing, a second opinion, experimental trials and treatments, psychological support, money-blind treatment, fast-tracked MRI results, best end-of-life care, and more.