Navigating the path of a brain tumor journey involves more than medical decisions—it’s about finding the right support throughout the entire journey. When facing such a diagnosis, it becomes clear how important it is to have all-encompassing care, including palliative care and hospice. These resources empower you and your family to make thoughtful decisions, providing the essential support for a more comfortable and dignified experience during the tough times. You’re not alone on this journey, and these resources are here to accompany you through every twist and turn.
Palliative care is like a big hug for your overall well-being as you’re navigating your brain tumor. It’s not just about the end-of-life; it covers the whole treatment journey. With symptoms like pain, fatigue, and emotional distress that often come with brain tumors, palliative care becomes a crucial player in making sure you feel supported and your well-being is looked after.
Resources for Palliative Care:
Brains for the Cure Palliative Care Guide: Start by exploring the comprehensive guide provided by Brains for the Cure on palliative care for brain tumor patients. This resource covers various aspects of palliative care, including symptom management, emotional support, and communication with healthcare providers. Link to the guide
National Cancer Institute (NCI) Palliative Care Information: The NCI offers a wealth of information on palliative care, tailored to cancer patients. Learn about the principles of palliative care, its benefits, and how it can be integrated into your overall treatment plan. Link to NCI’s palliative care information
Palliative Care Questions:
What is palliative care, and how can it benefit me as a brain tumor patient throughout my treatment journey?
How will palliative care address and manage the symptoms and side effects associated with my brain tumor and its treatment?
Can you provide information on the specific services offered under palliative care, such as pain management, emotional support, and assistance with daily activities?
Will palliative care be integrated into my overall treatment plan, and how will it coordinate with my primary medical team?
Are there resources or educational materials available to help me better understand and navigate palliative care for brain tumors?
Medication
Medication can be used to manage seizures, pain, or other symptoms and side effects from treatment or to make a patient comfortable after treatment. Any additions to a patient's treatment plan should be discussed with their medical team first.
Assistive Care
From walkers or wheelchairs to hearing aids, your loved one may need assistance due to physical changes during or after treatment. There is often financial assistance available for assistive care.
Emotional Care
Many patients, and their caregivers, may experience depression or anxiety associated with their diagnosis and treatment. Many hospitals offer support groups or mental health resources. You may consider working with a social worker to address these and other needs.
